Jonny Kennedy

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The Boy Whose Skin Fell Off Trailer

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The Boy Whose Skin Fell Off Trailer (2004)

25 March 2004

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer.